Privacy Policy and Terms of Use for Personal Data

Last updated: June 2025

Scikoop Inc. ("Scikoop" or "we") is committed to protecting the accuracy, confidentiality, and security of your personal information. This privacy policy describes the personal information we collect from you when using the Scikoop platform, how we use it, and with whom we may share it.

This policy applies to the personal information of all those who use the Scikoop platform: research coordinators, potential participants, EDI partner organization representatives, and other users of Scikoop Inc. services.

What is personal information on the platform?

For the purposes of this policy, personal information is information concerning an identifiable person collected via the Scikoop platform, including user profiles, research project data, participation information, and community engagement data.

What personal information does the platform collect?

For research coordinators:

Name, first name, title, institutional email address, affiliations, research project information (title, description, team, institution, aggregated sociodemographic data of participants).

For potential participants:

Optional demographic profile (age, gender, ethnicity, location, etc.), research preferences, engagement history, behavioral data from platform use.

For partner organizations:

Organizational information, contact details, mission, expertise, populations served, collaboration data.

Why does the platform collect this information?

The Scikoop platform collects personal information to: provide EDI assessment and community engagement services; facilitate connections between research teams and communities; generate personalized EDI improvement recommendations; ensure project monitoring and tracking; detect and correct representation bias; maintain platform security and integrity.

How does the platform use your information?

Your information is used exclusively for the purposes described in this data governance framework: EDI analysis of research projects, generation of algorithmic recommendations, facilitation of community engagement, performance monitoring and service improvement, compliance with legal and regulatory obligations.

The platform applies strict protection principles: data compartmentalization according to their nature, systematic anonymization and pseudonymization, access limitation according to the principle of least privilege, multi-layer encryption of all data.

When and with whom does the platform share your information?

The platform only shares your personal information with your explicit consent and in the following cases:

  • Authorized connections between research coordinators and partner organizations
  • Sharing project information with participants who have expressed interest
  • Collaboration with partner academic institutions under confidentiality agreements
  • Response to legal and regulatory obligations

No personal data is commercialized or sold to third parties. Anonymized aggregated data may be used for scientific research and improvement of EDI knowledge.

Your consent on the platform

When registering on the Scikoop platform, you explicitly consent to the use of your data according to the described terms. Your consent is granular: you can choose what information to share and with whom. You maintain full control over your privacy preferences through the platform interface.

Your rights on the platform

Access

Free consultation of all your data via your profile

Rectification

Immediate modification of your information

Portability

Export of your data in a standard format

Limitation

Restriction of certain processing

Erasure

Deletion of your account and associated data

Objection

Refusal of certain uses of your data

How to exercise your rights?

You can exercise your rights directly through the platform interface, by contacting our data protection officer (confidentiality@scikoop.com), or by using the request forms available online. We commit to responding within 30 days of your request.

Protection and security on the platform

The Scikoop platform implements the most advanced security measures: TLS 1.3 encryption for communications, AES-256 encryption for storage, multi-factor authentication, real-time access monitoring, secure automated backups, Quebec hosting compliant with ISO 27001 standards.

Data retention on the platform

Data is retained according to differentiated periods: active project data (project duration + 2 years), active user profiles (as long as the account is used), inactive profiles (deletion after 1 year of inactivity), certification data (7 years), security logs (3 years).

Modifications to this policy

This policy may be modified to reflect platform developments or regulatory changes. Modifications are communicated via the platform and by email. The current version is always available at www.scikoop.com.

Contact for the platform

For any questions regarding this policy or the use of your data on the platform:

Data Protection Officer: confidentiality@scikoop.com
Technical Support: support@scikoop.com

This privacy policy specific to the Scikoop platform was updated in June 2025 and applies to all platform users, in addition to the company's general data governance framework.